Local family shares how rare disease slowly killed their toddler

By Stephanie Claytor

Published 03/30 2014 08:43PM

Updated 03/31 2014 07:12PM

Several dozen people came out Sunday afternoon to celebrate the first ever Lexi Gordon Day. Lexi passed Mar. 2 after a long battle with Tay-Sach’s disease. Mar. 30, the day of the celebration, would’ve been Lexi's third birthday.


The family wanted to thank "Pay it Forward Networking" and everyone who has supported them.


"I just want people to remember not to take life for granted. Life is precious,” said Timothy Bryan Gordon, Lexi’s father."


"She touched a lot of people and I’ve got a lot of messages from mothers saying how they will now forever treat their kids different and not take for granted the little things that make them mad, “said Tracy Gordon.


According to the National Institute of Health, Tay-Sach's disease is an inherited disorder that destroys nerve cells in the brain and spinal cord. It eventually causes the child to become deaf, blind, and paralyzed. There is not a cure.


The family is keeping Lexi's memory alive by asking everyone to learn about the disease and donate to http://curetay-sachs.org/

Links: http://ghr.nlm.nih.gov/condition/tay-sachs-disease


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