Live Well. Do Tell. initiative aims to support people with Parkinson's

Parkinson’s disease is a life-changing condition that has no cure. This progressive neurodegenerative disorder causes a range of symptoms, including impaired movement, muscle stiffness and tremors.

Nearly one million people are living with Parkinson’s in the U.S. today.While advances have been made in treatment and symptom management, many people with Parkinson’s (PwPs) fluctuate between periods in which symptoms are controlled and periods during which symptoms return, or OFF periods.

· Approximately 350,000 PwPs in the U.S. experience OFF periodswhich can interrupt their ability to function throughout the day.

· The recognition of OFF periods can be challenging due to the great variability of symptoms.

· Additionally, PwPs may not discuss their symptoms or communicate the impact to their healthcare professionals (HCPs) for a variety of reasons. This can contribute to the difficulty of identifying symptoms and result in missed opportunities for an optimal dialogue in the doctor’s office.

“Live Well. Do Tell.” is a new initiative, created by Acorda with input from a multi-disciplinary steering committee of Parkinson’s leaders and experts, to build an understanding and awareness of OFF periods and bridge communication gaps among PwPs, care partners, advocates and HCPs. The first output of the initiative includes six recommendations on how the Parkinson’s community can address gaps in the support of PwPs and their care partners with respect to identifying and communicating about Parkinson’s symptoms.


More Stories

Don't Miss

Trending Stories

Latest News