Sarah Ebarb and Chas Duffield have been selected to represent Louisiana at the 7th annual Tourett Syndrome Youth Ambassador Training in Washington, D.C.
Sarah is a student at Caddo Magnet High School, and she was diagnosed at age 10 with the disorder. Chas, a student at Loyola College Prep, was diagnosed at age seven.
"Tourett Syndrome is often triggered by stress and anxiety," says Sarah. "And so anytime I'm taking a test or speaking in front of people I tend to tick more, and it makes it harder for me tospeak and concentrate."
"Well, different things like making guteral noises," says Chas. "And Tourette also comes along with things like OCD and ADD, and I have both of those, so I have to deal with those as well."
Both 16 year-olds had to complete an application and write an essay describing why they want to be youth ambassador's.
While in Washington, D.C., they'll learn different training techniques and how to talk about the disorder with others.
Plus, they'll get a chance to talk to members of Congress. On Thursday, the Tourette Syndrome Association will host a luncheon for lawmakers.
"I really wante to help other kids who have Tourette Syndrome, not to feel embarrased or ashamed, because it's how they were made," says Sarah. "And God made us all beautiful and wonderful."
Once they return, Sarah and Chas will make presentations at their schools and share their knowledge with educators at both schools.
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