Foundation makes local girl’s wish come true

Local News

A little girl with a rare genetic disorder and a goal to become a model had her dreams come true Sunday when a charity arranged for her to star in a fashion show.  

Caroline Bange, who suffers from Loeys Dietz Syndome, a genetic disorder that affects her connective tissue, spends a lot of time traveling to doctors’ appointments across the country.

But on Sunday, the 10-year-old was rocking the runway to the cheers of a crowd at Parish Girl’s Boutique on Line Avenue in Shreveport.

The fashion show was sponsored by Pay it Forward Networking. A volunteer-run foundation that grants wishes to children with special needs and/or life-threatening illnesses through networking.

Caroline, who said she’s an average kid and loves fashion said she did a lot of practicing after she found out she was about to take to the runway about a month ago.  

Jennie Bange, Caroline’s mom, said her daughter was diagnosed when she was five-months-old. “When she was diagnosed,” Bange said, “there were only about 300 people worldwide who had her condition, so it was quite scary.”

Bange said the disease primarily affects Carolyn’s heart, and she’s monitored very closely with CT scans MRI’s and ECHO (echocardiogram) tests.

“It’s pretty emotional,” Bange said. “She doesn’t get to go on stage and do all the things a lot of other 10-year-olds get to do.”

The fashion show was sponsored by Pay it Forward Networking. A volunteer-run foundation that grants wishes to children with special needs and/or life-threatening illnesses through networking.

“She is such a special little girl with a unique personality. So this was truly special for her,” said Kassi Robinson, founder of Pay it Forward Networking.

To learn more about Loeys Dietz visit http://loeysdietz.org/en/

To learn about Pay it Forward Networking visit https://www.payitforwardnetworking.com/

Copyright 2019 Nexstar Broadcasting, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.

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